Trial literature on very rare tumours and diseases

Literature referring to the registry for rare tumours (STEP), to EBV-associated nasopharyngeal carcinoma, malignant endocrine tumours (MEN), Langerhans cell histiocytosis (LCH), and to other rare tumours

Last modification: 2024/05/03 https://kinderkrebsinfo.de/doi/e123839

Networks on rare tumours

Trial literature by national and international networks for rare tumours (STEP, eXpert)

Pubmed

  1. Abdel-Salam GMH, Hellmuth S, Gradhand E, Käseberg S, Winter J, Pabst AS, Eid MM, Thiele H, Nürnberg P, Budde BS, Toliat MR, Brecht IB, Schroeder C, Gschwind A, Ossowski S, Häuser F, Rossmann H, Abdel-Hamid MS, Hegazy I, Mohamed AG, Schneider DT, Bertoli-Avella A, Bauer P, Pearring JN, Pfundt R, Hoischen A, Gilissen C, Strand D, Zechner U, Tashkandi SA, Faqeih EA, Stemmann O, Strand S, Bolz HJ: Biallelic MAD2L1BP (p31comet) mutation is associated with mosaic aneuploidy and juvenile granulosa cell tumors. JCI insight 2023, 8 [PMID: 37796616] ABD2023
  2. Nussbaumer G, Benesch M, Bokros A, Brecht IB, Speicher I, Suppan E, Tschauner S, Vokuhl C, Schneider DT: Bilateral testicular juvenile granulosa cell tumor: Tumor control with conservative, antihormonal therapy. Pediatric blood & cancer 2023, 70:e29895 [PMID: 35927968] NUS2023
  3. Abele M, Grabner L, Blessing T, Block A, Agaimy A, Kratz C, Simon T, Calaminus G, Heine S, Corbacioglu S, Christiansen H, Schneider DT, Brecht IB: Epidemiology and Characteristics of Gastric Carcinoma in Childhood-An Analysis of Data from Population-Based and Clinical Cancer Registries. Cancers 2023, 15 [PMID: 36612313] ABE2023
  4. Liebmann A, Admard J, Armeanu-Ebinger S, Wild H, Abele M, Gschwind A, Seibel-Kelemen O, Seitz C, Bonzheim I, Riess O, Demidov G, Sturm M, Schadeck M, Pogoda M, Bien E, Krawczyk M, Jüttner E, Mentzel T, Cesen M, Pfaff E, Kunc M, Forchhammer S, Forschner A, Leiter-Stöppke U, Eigentler TK, Schneider DT, Schroeder C, Ossowski S, Brecht IB: UV-radiation and MC1R germline mutations are risk factors for the development of conventional and spitzoid melanomas in children and adolescents. EBioMedicine 2023, 96: 104797 [PMID: 37716236] LIE2023
  5. Bauer J, Köhler N, Maringer Y, Bucher P, Bilich T, Zwick M, Dicks S, Nelde A, Dubbelaar M, Scheid J, Wacker M, Heitmann JS, Schroeder S, Rieth J, Denk M, Richter M, Klein R, Bonzheim I, Luibrand J, Holzer U, Ebinger M, Brecht IB, Bitzer M, Boerries M, Feucht J, Salih HR, Rammensee HG, Hailfinger S, Walz JS: The oncogenic fusion protein DNAJB1-PRKACA can be specifically targeted by peptide-based immunotherapy in fibrolamellar hepatocellular carcinoma. Nature communications 2022, 13: 6401 [PMID: 36302754] BAU2022
  6. Hippert F, Desing L, Diez S, Witowski A, Bernbeck B, Abele M, Seitz C, Erdmann F, Brecht I, Schneider DT: Rare Tumors in Children and Adolescents - the STEP Working Group's Evolution to a Prospective Registry. Klinische Padiatrie 2022, 234: 146 [PMID: 34798669] HIP2022
  7. Achajew A, Brecht IB, Radespiel-Tröger M, Meyer M, Metzler M, Bremensdorfer C, Spix C, Erdmann F, Schneider DT, Abele M: Rare pediatric tumors in Germany - not as rare as expected: a study based on data from the Bavarian Cancer Registry and the German Childhood Cancer Registry. European journal of pediatrics 2022, 181: 2723 [PMID: 35478271] ACH2022
  8. Abele M, Voggel S, Bremensdorfer C, Spix C, Erdmann F, Kuhlen M, Redlich A, Ebinger M, Lang P, Schneider DT, Brecht IB: Incidences and characteristics of primary lung malignancies in childhood in Germany: An analysis of population-based data from German cancer registries. Pediatric blood & cancer 2022,e2974 [PMID: 35488714] ABE2022
  9. Schneider DT, Orbach D, Ben-Ami T, Bien E, Bisogno G, Brecht IB, Cecchetto G, Ferrari A, Godzinski J, Janic D, Lopez Almaraz R, Pourtsidis A, Roganovic J, Schultz KAP, Stachowicz-Stencel T, Fresneau B: Consensus recommendations from the EXPeRT/PARTNER groups for the diagnosis and therapy of sex cord stromal tumors in children and adolescents. Pediatric blood & cancer 2021, 68 Suppl 4:e29017 [PMID: 33760357] SCH2021b
  10. Ferrari A, Schneider DT, Bisogno G, Reguerre Y, Godzinski J, Bien E, Stachowicz-Stencel T, Cecchetto G, Brennan B, Roganovic J, Ben-Ami T, Virgone C, Farinha NR, Mancini S, Orbach D, Brecht IB: Facing the challenges of very rare tumors of pediatric age: The European Cooperative Study Group for Pediatric Rare Tumors (EXPeRT) background, goals, and achievements. Pediatric blood & cancer 2021, 68 Suppl 4:e28993 [PMID: 34174158] FER2021a
  11. Hovsepyan S, Hakobyan L, Mkhitaryan A, Terenziani M, Ferrari A, Sironi G, Schneider DT, Tamamyan G: Treating rare tumors with the assistance of the expert virtual consultation system: two cases of juvenile granulosa cell tumors. Tumori 2021, 107:NP141-NP143 [PMID: 34674583] HOV2021
  12. Voggel S, Abele M, Seitz C, Agaimy A, Vokuhl C, Dirksen U, Bier A, Flaadt T, Classen CF, Claviez A, Schneider DT, Brecht IB: Primary lung carcinoma in children and adolescents - Clinical characteristics and outcome of 12 cases from the German registry for rare paediatric tumours (STEP). Lung cancer 2021, 160: 66 [PMID: 34418863] VOG2021
  13. Bisogno G, Sarnacki S, Stachowicz-Stencel T, Minard Colin V, Ferrari A, Godzinski J, Gauthier Villars M, Bien E, Hameury F, Helfre S, Schneider DT, Reguerre Y, Lopez Almaraz R, Janic D, Cesen M, Kolenova A, Rascon J, Martinova K, Cosnarovici R, Pourtsidis A, Ben Ami T, Roganovic J, Koscielniak E, Schultz KAP, Brecht IB, Orbach D: Pleuropulmonary blastoma in children and adolescents: The EXPeRT/PARTNER diagnostic and therapeutic recommendations. Pediatric blood & cancer 2021, 68 Suppl 4:e29045 [PMID: 33826235] BIS2021
  14. Ben-Ami T, Kontny U, Surun A, Brecht IB, Almaraz RL, Dragomir M, Pourtsidis A, Casanova M, Fresneau B, Bisogno G, Schneider DT, Reguerre Y, Bien E, Stachowicz-Stencel T, Österlundh G, Wygoda M, Janssens GO, Zsiros J, Jehanno N, Brisse HJ, Gandola L, Christiansen H, Claude L, Ferrari A, Rodriguez-Galindo C, Orbach D: Nasopharyngeal carcinoma in children and adolescents: The EXPeRT/PARTNER diagnostic and therapeutic recommendations. Pediatric blood & cancer 2021, 68 Suppl 4:e29018 [PMID: 33844410] BEN2021
  15. Bien E, Roganovic J, Krawczyk MA, Godzinski J, Orbach D, Cecchetto G, Barthlen W, Defachelles AS, Ferrari A, Weldon CB, Brecht IB, Schneider DT, Bisogno G, Kolenova A, Ben-Ami T, Martinova K, Virgone C, Stachowicz-Stencel T, Kachanov D, Reguerre Y: Pancreatoblastoma in children: EXPeRT/PARTNER diagnostic and therapeutic recommendations. Pediatric blood & cancer 2021, 68 Suppl 4:e29112 [PMID: 34174157] BIE2021
  16. Ferrari A, Lopez Almaraz R, Reguerre Y, Cesen M, Bergamaschi L, Indini A, Schneider DT, Godzinski J, Bien E, Stachowicz-Stencel T, Eigentler TK, Chiaravalli S, Krawczyk MA, Pappo A, Orbach D, Bisogno G, Brecht IB: Cutaneous melanoma in children and adolescents: The EXPeRT/PARTNER diagnostic and therapeutic recommendations. Pediatric blood & cancer 2021, 68 Suppl 4:e28992 [PMID: 34174159] FER2021
  17. Surun A, Schneider DT, Ferrari A, Stachowicz-Stencel T, Rascon J, Synakiewicz A, Agaimy A, Martinova K, Kachanov D, Roganovic J, Bien E, Bisogno G, Brecht IB, Kolb F, Thariat J, Moya-Plana A, Orbach D: Salivary gland carcinoma in children and adolescents: The EXPeRT/PARTNER diagnosis and treatment recommendations. Pediatric blood & cancer 2021, 68 Suppl 4:e29058 [PMID: 34174160] SUR2021
  18. Virgone C, Roganovic J, Vorwerk P, Redlich A, Schneider DT, Janic D, Bien E, López-Almaraz R, Godzinski J, Osterlundh G, Stachowicz-Stencel T, Brugières L, Brecht IB, Thomas-Teinturier C, Fresneau B, Surun A, Ferrari A, Bisogno G, Orbach D: Adrenocortical tumours in children and adolescents: The EXPeRT/PARTNER diagnostic and therapeutic recommendations. Pediatric blood & cancer 2021, 68 Suppl 4:e29025 [PMID: 34174161] VIR2021
  19. Brecht IB, De Paoli A, Bisogno G, Orbach D, Schneider DT, Leiter U, Offenmueller S, Cecchetto G, Godzinski J, Bien E, Stachowicz-Stencel T, Ben-Ami T, Chiaravalli S, Maurichi A, De Salvo GL, Sorbara S, Bodemer C, Garbe C, Reguerre Y, Ferrari A: Pediatric patients with cutaneous melanoma: A European study. Pediatric blood & cancer 2018, 65:e26974 [PMID: 29350487] BRE2018
  20. Offenmueller S, Leiter U, Bernbeck B, Garbe C, Eigentler T, Borkhardt A, Classen CF, Corbacioglu S, Dirksen U, Ebetsberger-Dachs G, Heinzerling L, Jorch N, Kuhlen M, Lawlor J, Niggli F, Streiter M, Schneider DT, Brecht I: Clinical characteristics and outcome of 60 pediatric patients with malignant melanoma registered with the German Pediatric Rare Tumor Registry (STEP). Klinische Padiatrie 2017, 229: 322 [PMID: 29017184] OFF2017
  21. Weber ML, Schneider DT, Offenmüller S, Kaatsch P, Einsiedel HG, Benesch M, Claviez A, Ebinger M, Kramm C, Kratz C, Lawlor J, Leuschner I, Merkel S, Metzler M, Nustede R, Petsch S, Seeger KH, Schlegel PG, Suttorp M, Zolk O, Brecht IB: Pediatric Colorectal Carcinoma is Associated With Excellent Outcome in the Context of Cancer Predisposition Syndromes. Pediatric blood & cancer 2016, 63: 611 [PMID: 26575411] WEB2016
  22. Schneider DT: Sex Cord Stromal Tumors: It is Networking-or Not Working. Pediatric blood & cancer 2015, 62: 2065 [PMID: 26248598] SCH2015d
  23. Brecht IB, Garbe C, Gefeller O, Pfahlberg A, Bauer J, Eigentler TK, Offenmueller S, Schneider DT, Leiter U: 443 paediatric cases of malignant melanoma registered with the German Central Malignant Melanoma Registry between 1983 and 2011. European journal of cancer (Oxford, England : 1990) 2015, 51: 861 [PMID: 25794606] BRE2015a
  24. Schneider DT, Orbach D, Cecchetto G, Stachowicz-Stencel T, Brummel B, Brecht IB, Bisogno G, Ferrari A, Reguerre Y, Godzinski J, Calaminus G, Patte C, Göbel U: Ovarian Sertoli Leydig cell tumours in children and adolescents: An analysis of the European Cooperative Study Group on Pediatric Rare Tumors (EXPeRT). European journal of cancer (Oxford, England : 1990) 2014,Epub ahead of print [PMID: 25514863] SCH2014b
  25. Brecht IB, Bremensdorfer C, Schneider DT, Frühwald MC, Offenmüller S, Mertens R, Vorwerk P, Koscielniak E, Bielack SS, Benesch M, Hero B, Graf N, von Schweinitz D, Kaatsch P: Rare malignant pediatric tumors registered in the German Childhood Cancer Registry 2001-2010. Pediatric blood & cancer 2014, 61: 1202 [PMID: 24585499] BRE2014
  26. Ferrari A, Schneider DT, Bisogno G, EXPeRT Board: The founding of the European Cooperative Study Group on Pediatric Rare Tumors--EXPeRT. Expert review of anticancer therapy 2013, 13: 1 [PMID: 23259419] FER2013
  27. Brecht IB, Agaimy A, Besendörfer M, Carbon R, Thiel FC, Rompel O, Osinski D, Langer T, Metzler M, Holter W: Malignant Peritoneal Mesothelioma in a 16-Year-Old Girl: Presentation of a Rare Disease. Klinische Padiatrie 2012, 224: 170 [PMID: 22513792] BRE2012a
  28. Bisogno G, Ferrari A, Bien E, Brecht IB, Brennan B, Cecchetto G, Godzinski J, Orbach D, Reguerre Y, Stachowicz-Stencel T, Schneider DT: Rare Cancers in Children - The EXPeRT Initiative: A Report from the European Cooperative Study Group on Pediatric Rare Tumors. Klin Pädiatr 2012, 224: 416 [PMID: 23143769] BIS2012
  29. Schneider DT, Brecht IB, Olson ThA, Ferrari A (Eds): Rare Tumors In Children and Adolescents. Series: Pediatric Oncology, Springer-Verlag 2012 [ISBN: 978-3-642-04196-9] SCH2012
  30. Brecht IB, Schneider DT, Klöppel G, von Schweinitz D, Barthlen W, Hamre MR: Malignant Pancreatic Tumors in Children and Young Adults: Evaluation of 228 Patients Identified through the Surveillance, Epidemiology, and End Result (SEER) Database. Klinische Padiatrie 2011, 223: 341 [PMID: 22012608] BRE2011
  31. Schneider DT, Brecht I: Ein Netzwerk für besonders seltene Tumoren. WIR 2010, 3/10, 18 [URI: http://www.kinderkrebsstiftung.de/ fileadmin/ Redaktion/ Zeitschrift_Wir/ 2010_3/ NetzwerkSelteneTumore.pdf] SCH2010f
  32. Schneider DT, Brecht IB: Care for rare cancers: improved care requires improved communication. Klinische Padiatrie 2010, 222: 124 [PMID: 20514613] SCH2010e
  33. Brecht IB, Graf N, Schweinitz D, Frühwald MC, Bielack SS, Schneider DT: Networking for children and adolescents with very rare tumors: foundation of the GPOH Pediatric Rare Tumor Group. Klinische Padiatrie 2009, 221: 181 [PMID: 19437371] BRE2009
  34. Ferrari A, Bisogno G, De Salvo GL, Indolfi P, Perilongo G, Cecchetto G, Italian Study on Rare Tumours in Paediatric Age (TREP),Associazione Italiana Ematologia Oncologia Pediatrica (AIEOP): The challenge of very rare tumours in childhood: the Italian TREP project. European journal of cancer 2007, 43: 654 [PMID: 17049226] FER2007

EBV-associated nasopharynx carcinoma

Trial literature on EBV-associated nasopharyngeal carcinoma

  1. Römer T, Franzen S, Kravets H, Farrag A, Makowska A, Christiansen H, Eble MJ, Timmermann B, Staatz G, Mottaghy FM, Bührlen M, Hagenah U, Puzik A, Driever PH, Greiner J, Jorch N, Tippelt S, Schneider DT, Kropshofer G, Overbeck TR, Christiansen H, Brozou T, Escherich G, Becker M, Friesenbichler W, Feuchtinger T, Puppe W, Heussen N, Hilgers RD, Kontny U: Multimodal Treatment of Nasopharyngeal Carcinoma in Children, Adolescents and Young Adults-Extended Follow-Up of the NPC-2003-GPOH Study Cohort and Patients of the Interim Cohort. Cancers 2022, 14 [PMID: 35267570] ROE2022
  2. Makowska A, Lelabi N, Nothbaum C, Shen L, Busson P, Tran TTB, Eble M, Kontny U: Radiotherapy Combined with PD-1 Inhibition Increases NK Cell Cytotoxicity towards Nasopharyngeal Carcinoma Cells. Cells 2021, 10 [PMID: 34572108] MAK2021
  3. Makis A, Voskaridou E, Papassotiriou I, Hatzimichael E: Novel Therapeutic Advances in β-Thalassemia. Biology 2021, 10 [PMID: 34207028] MAK2021
  4. Kontny U, Franzen S, Behrends U, Bührlen M, Christiansen H, Delecluse H, Eble M, Feuchtinger T, Gademann G, Granzen B, Kratz CP, Lassay L, Leuschner I, Mottaghy FM, Schmitt C, Staatz G, Timmermann B, Vorwerk P, Wilop S, Wolff HA, Mertens R: Diagnosis and Treatment of Nasopharyngeal Carcinoma in Children and Adolescents - Recommendations of the GPOH-NPC Study Group. Klinische Padiatrie 2016, 228: 105 [PMID: 27135270] KON2016
  5. Buehrlen M, Zwaan CM, Granzen B, Lassay L, Deutz P, Vorwerk P, Staatz G, Gademann G, Christiansen H, Oldenburger F, Tamm M, Mertens R: Multimodal treatment, including interferon beta, of nasopharyngeal carcinoma in children and young adults: preliminary results from the prospective, multicenter study NPC-2003-GPOH/DCOG. Cancer 2012, 118: 4892 [PMID: 22359313] BUE2012a
  6. Mertens R, Granzen B, Lassay L, Bucsky P, Hundgen M, Stetter G, Heimann G, Weiss C, Hess CF, Gademann G: Treatment of nasopharyngeal carcinoma in children and adolescents: definitive results of a multicenter study (NPC-91-GPOH). Cancer 2005, 104: 1083 [PMID: 15999363] MER2005a
  7. Mertens R, Granzen B, Lassay L, Gademann G, Hess CF, Heimann G: Nasopharyngeal carcinoma in childhood and adolescence: concept and preliminary results of the cooperative GPOH study NPC-91. Gesellschaft für Pädiatrische Onkologie und Hämatologie. Cancer 1997, 80: 951 [PMID: 9307197] MER1997a
  8. Mertens R, Lassay L, Heimann G: Combined treatment of nasopharyngeal cancer in children and adolescents--concept of a study. Klinische Padiatrie 1993, 205: 241 [PMID: 8397321] MER1993

Malignant endocrine tumours

Trial literature on malignant endocrine tumours (MEN)

Pubmed

  1. Redlich A, Boxberger N, Kurt Werner S, Frühwald M, Rohrer T, Vorwerk P: Sensitivity of fine-needle biopsy in detecting pediatric differentiated thyroid carcinoma. Pediatric blood & cancer 2012, 59: 233 [PMID: 22184105] RED2012a
  2. Hubertus J, Boxberger N, Redlich A, von Schweinitz D, Vorwerk P: Surgical aspects in the treatment of adrenocortical carcinomas in children: data of the GPOH-MET 97 trial. Klinische Padiatrie 2012, 224: 143 [PMID: 22504769] HUB2012
  3. Boxberger N, Redlich A, Böger C, Leuschner I, von Schweinitz D, Dralle H, Vorwerk P: Neuroendocrine tumors of the appendix in children and adolescents. Pediatric blood & cancer 2012, [DOI: 10.1002/pbc.24267] BOX2012
  4. Redlich A, Boxberger N, Strugala D, Frühwald MC, Leuschner I, Kropf S, Bucsky P, Vorwerk P: Systemic Treatment of Adrenocortical Carcinoma in Children: Data from the German GPOH-MET 97 Trial. Klinische Padiatrie 2012, 224: 366 [PMID: 23143764] RED2012
  5. Oommen PT, Romahn A, Linden T, Frühwald MC, Bucsky P: UICC-2002 TNM classification is not suitable for differentiated thyroid cancer in children and adolescents. Pediatr Blood Cancer 2008, 50: 1159-62. [PMID: 17973315] OOM2008
  6. Loncarevic IF, Hering A, Posorski N, Linden T, Hoyer H, Bucsky P: Number of genomic imbalances correlates with the overall survival for adrenocortical cancer in childhood. Pediatr Blood Cancer 2008, 51: 356-62. [PMID: 18478573] LON2008
  7. Hering A, Michel S, Ernst G, Claussen U, Kloetzer Ch, Parlowsky T, Bucsky P, Loncarevic IF: Characteristic chromosomal imbalances in pediatric pheochromocytoma. Genes Chromosomes and Cancer (accepted paper) HER2005a
  8. Linden T, Oommen PT, Ueck B, Bucsky P: Paediatric adrenocortical carcinoma: preliminary results of the multicentre therapy study on malignant endocrine tumours GPOH-MET 97. Pediatric Blood & Cancer 2005, 482 P. D. 112 LIN2005
  9. Oommen PT, Linden T, Romahn A, Bucsky P: UICC-2002 TNM-classification is not suitable for differentiated thyroid carcinoma in children and adolescent - interim results of GPOH-MET 97 trial. Pediatric Blood & Cancer 2005, 45: 482 P.D. 111 OOM2002
  10. Seyyedi S, Parlowsky T, Bucsky P : Interimsanalyse der interdisziplinären multizentrischen Therapieoptimierungsstudie im Kindes- und Jugendalter, GPOH-MET 97. Monatsschr. Kinderheilk 2002, 150: 1303-1304. SEY2002
  11. Parlowsky T, Bucsky P: Aktueller Stand der interdisziplinären multizentrischen Therapiestudie "Maligne endokrine Tumoren im Kindes- und Jugendalter - GPOH-MET 97". Monatsschr. Kinderheilkd 2000, 148: 971 Abstr. PAR2000

Histiocytosis

Trial literature on Langerhans cell histiocytosis (LCH)

Pubmed

  1. Lehrnbecher T, Minkov M: Leitlinie 025/015 - Langerhanszell-Histiozytose (LCH) im Kindes- und Jugendalter. S1-Leitlinie (Handlungsempfehlung) der Gesellschaft für Pädiatrische Onkologie und Hämatologie und der Deutschen Gesellschaft für Kinder- und Jugendmedizin AWMF online 2023 [URI: https://register.awmf.org/ assets/ guidelines/ 025-015l_S1_Langerhanszell-Histiozytose-LCH-Kinder-Jugendliche_2023-05.pdf] LEH2023a
  2. Bagnasco F, Zimmermann SY, Egeler RM, Nanduri VR, Cammarata B, Donadieu J, Lehrnbecher T, Haupt R: Langerhans cell histiocytosis and associated malignancies: A retrospective analysis of 270 patients. European journal of cancer 2022, 172: 138 [PMID: 35772351] BAG2022
  3. Lakatos K, Sterlich K, Pötschger U, Thiem E, Hutter C, Prosch H, Minkov M: Langerhans Cell Histiocytosis of the Orbit: Spectrum of Clinical and Imaging Findings. The Journal of pediatrics 2021, 230: 174-181.e1 [PMID: 33157073] LAK2021
  4. Minkov M, Pötschger U, Thacker N, Astigarraga I, Braier J, Donadieu J, Henter JI, Lehrnbecher T, Rodriguez-Galindo C, Sieni E, Nanduri V, van den Bos C, Abla O, LCH Study Group of the Histiocyte Society: Additive Prognostic Impact of Gastrointestinal Involvement in Severe Multisystem Langerhans Cell Histiocytosis. The Journal of pediatrics 2021, 237: 65-70.e3 [PMID: 34146548] MIN2021
  5. Lehrnbecher T, Minkov M: Histiozytosen inkl. Langerhans-Zell-Histiozytose. In: Niemeyer C, Eggert A (Hrsg.): Pädiatrische Hämatologie und Onkologie, Springer-Verlag GmbH Deutschland, 2. vollständig überarbeitete Auflage 2018, 94 [ISBN: 978-3-662-43685-1] LEH2018a
  6. Minkov M, Rodriguez-Galindo C: Treatment of Langerhans cell histiocytosis: it is time to learn from the past. Br J Haematol 2015, 171: 148 [PMID: 25816900] MIN2015a
  7. Gadner H, Minkov M, Grois N, Pötschger U, Thiem E, Aricò M, Astigarraga I, Braier J, Donadieu J, Henter JI, Janka-Schaub G, McClain KL, Weitzman S, Windebank K, Ladisch S: Therapy prolongation improves outcome in multi-system Langerhans cell histiocytosis. Blood 2013, Epub ahead of print [PMID: 23589673] GAD2013
  8. Lehrnbecher T, Salzmann-Manrique E, Soerensen J, Beutel K, Janka G, Gadner H, Minkov M: Variant alleles of cytokine genes influence risk and clinical course of Langerhans cell histiocytosis. British journal of haematology 2011,Epub ahead of print [PMID: 21848890] LEH2011
  9. Minkov M, Steiner M, Pötschger U, Aricò M, Braier J, Donadieu J, Grois N, Henter JI, Janka G, McClain K, Weitzman S, Windebank K, Ladisch S, Gadner H, International LCH Study Group: Reactivations in multisystem Langerhans cell histiocytosis: data of the international LCH registry. The Journal of pediatrics 2008, 153: 700-5, 705.e1 [PMID: 18589441] MIN2008
  10. Minkov M, Pötschger U, Grois N, Gadner H, Dworzak MN: Bone marrow assessment in Langerhans cell histiocytosis. Pediatric blood & cancer 2007, 49: 694 [PMID: 17455318] MIN2007
  11. Minkov M, Prosch H, Steiner M, Grois N, Pötschger U, Kaatsch P, Janka-Schaub G, Gadner H: Langerhans cell histiocytosis in neonates. Pediatric blood & cancer 2005, 45: 802 [PMID: 15770639] MIN2005
  12. Prosch H, Grois N, Prayer D, Waldhauser F, Steiner M, Minkov M, Gadner H: Central diabetes insipidus as presenting symptom of Langerhans cell histiocytosis. Pediatric blood & cancer 2004, 43: 594 [PMID: 15382278] PRO2004
  13. Minkov M, Grois N, Heitger A, Pötschger U, Westermeier T, Gadner H, DAL-HX Study Group: Response to initial treatment of multisystem Langerhans cell histiocytosis: an important prognostic indicator. Medical and pediatric oncology 2002, 39: 581 [PMID: 12376981] MIN2002
  14. Gadner H, Grois N, Arico M, Broadbent V, Ceci A, Jakobson A, Komp D, Michaelis J, Nicholson S, Pötschger U, Pritchard J, Ladisch S, Histiocyte Society: A randomized trial of treatment for multisystem Langerhans' cell histiocytosis. The Journal of pediatrics 2001, 138: 728 [PMID: 11343051] GAD2001
  15. Titgemeyer C, Grois N, Minkov M, Flucher-Wolfram B, Gatterer-Menz I, Gadner H: Pattern and course of single-system disease in Langerhans cell histiocytosis data from the DAL-HX 83- and 90-study. Medical and pediatric oncology 2001, 37: 108 [PMID: 11496348] TIT2001
  16. Titgemeyer C, Grois N, Minkov M, Flucher-Wolfram B, Gatterer-Menz I, Gadner H: Pattern and course of single-system disease in Langerhans cell histiocytosis data from the DAL-HX 83- and 90-study. Med Pediatr Oncol 2001, 37: 108 [PMID: 11496348] TIT2001
  17. Gadner H, Grois N, Arico M, Broadbent V, Ceci A, Jakobson A, Komp D, Michaelis J, Nicholson S, Potschger U, Pritchard J, Ladisch S: A randomized trial of treatment for multisystem Langerhans' cell histiocytosis. J Pediatr 2001, 138: 728 [PMID: 11343051] GAD2001
  18. Gadner H: Langerhans' cell histiocytosis - still an unsolved problem editorial. Pediatr Hematol Oncol 1999, 16: 489 [PMID: 10599086] GAD1999a

Trial literature on hemophagocytic lymphohistiocytosis (HLH)

Pubmed

  1. Lehmberg K, Ehl S: Hämophagozytische Lymphohistiozytose. Pädiatrische Hämatologie und Onkologie, Hrsg: A. Eggert, C. Niemeyer, Springer Verlag 2. Auflage 2018 [ISSN: 978-3-662-43686-8] LEH2018
  2. Lehmberg K, Nichols KE, Henter JI, Girschikofsky M, Greenwood T, Jordan M, Kumar A, Minkov M, La Rosée P, Weitzman S: Consensus recommendations for the diagnosis and management of hemophagocytic lymphohistiocytosis associated with malignancies. Haematologica 2015, 100: 997 [PMID: 26314082] LEH2015a
  3. Lehmberg K, Sprekels B, Nichols KE, Woessmann W, Müller I, Suttorp M, Bernig T, Beutel K, Bode SF, Kentouche K, Kolb R, Längler A, Minkov M, Schilling FH, Schmid I, Vieth S, Ehl S, Zur Stadt U, Janka GE: Malignancy-associated haemophagocytic lymphohistiocytosis in children and adolescents. Br J Haematol 2015, 170: 539 [PMID: 25940575] LEH2015

Other rare tumours

Literature on other rare tumours

  1. Brecht IB, Schneider DT, Klöppel G, von Schweinitz D, Barthlen W, Hamre MR: Malignant Pancreatic Tumors in Children and Young Adults: Evaluation of 228 Patients Identified through the Surveillance, Epidemiology, and End Result (SEER) Database. Klinische Padiatrie 2011, 223: 341 [PMID: 22012608] BRE2011
  2. Distelmaier F, Calaminus G, Harms D, Sträter R, Kordes U, Fleischhack G, Göbel U, Schneider DT: Ovarian small cell carcinoma of the hypercalcemic type in children and adolescents: a prognostically unfavorable but curable disease. Cancer 2006, 107: 2298 [PMID: 16998935] DIS2006
  3. Schneider DT, Jänig U, Calaminus G, Göbel U, Harms D: Ovarian sex cord-stromal tumors--a clinicopathological study of 72 cases from the Kiel Pediatric Tumor Registry. Virchows Archiv : an international journal of pathology 2003, 443: 549 [PMID: 12910419] SCH2003l